Neuropsychiatric symptoms are often the first sign of a tick-borne infection, yet they are frequently overlooked. The story of Alec Dulude, an engineering student and athlete whose life changed drastically due to undiagnosed Lyme disease and Bartonella, serves as a sobering reminder of the gaps in current medical diagnostics. Despite receiving care from various specialists, the underlying cause of his fatigue, anxiety, and eventual psychosis remained hidden for years. By the time the diagnosis was confirmed, the damage was severe.
After his death in 2023, his parents, Dr. Rick and Pam Dulude, chose to transform their grief into a mission. They founded Alec’s Place to educate medical professionals and families about the connection between infections and psychiatric decline. Dr. Dulude, an experienced anesthesiologist, emphasizes that physicians must stay curious and listen to patients when they report sudden changes in behavior or mental health.
This family’s advocacy extends beyond awareness. They have donated biological samples for research to help scientists better understand how Borrelia and Bartonella influence brain function. Their efforts aim to ensure that no other family endures the same search for answers while a loved one suffers.
Their work is documented in the book Being Misdiagnosed by Terri McCormick and highlighted in the Love, Hope, Lyme podcast. The Dulude family remains committed to the belief that early recognition of these symptoms can prevent further tragedies. Their story is a call to action for clinicians to consider infectious origins for psychiatric issues and for families to trust their instincts when medical answers seem incomplete.