A local community event at the Onalaska Omni Center brought people together to support the Sullivan family. Three young daughters in the family face GACI, an ultra-rare genetic disease that causes calcium to build up in arteries and organs.
Jamie Sullivan, the girls' mother, organized the fundraiser to address the invisible nature of the condition. While the children appear healthy on the outside, the disease poses constant, severe risks to their heart and arterial health. The diagnosis requires frequent medical monitoring and specialized care.
Funds from this event provide direct assistance for the family's medical and travel expenses. A portion of the proceeds also benefits the Brighter Hope Foundation Worldwide, a group that assists families dealing with rare genetic disorders. Organizers hope the event increases awareness for a condition that remains unfamiliar even among some medical professionals.
For those who were unable to attend the event in person, there is still an opportunity to provide support. Contributions for the Sullivan family and the Brighter Hope Foundation can be made through realitywarz.com.